Frickers! hehe.

Vrooooooommmm....

I hate people. So, I get this call today....

"Hi, do you have Manny's cheesecakes?"

*Manny's is a cheesecake place in Utica somewhere*

"Um, no. We make cheesecake but they're our own cheesecakes."

"oh, I thought I saw a sign in your window that said that..."

What the hell?

I get another phone call...

"Hi, do you carry Hemstrought's halfmoons?"

"Um, no. We make our own halfmoons. And Hemstrought's is now out of business, by the way."

What the hell?

I get another phone call...

"Hi, do you sell Hemstrought's cakes?"

"No, we make our own cakes here. And Hemstrought's is out of business."

What the hell?!? Oh YEAH. Actually we DO carry Hemstrought halfmoons, Manny's Cheesecakes, how about Dunkin' Donuts Donuts, and you know what? JESUS CHRIST makes our cakes!

I swear to Christ..

Anyway. That just pisses me off.

So, I still have not seen a neurologist yet. The University Hospital in Syracuse hasn't called me yet for an appointment. My paperwork is still on her desk and I'm "pending an appointment." Um, by the time they get to read my paperwork none of it will matter. Blah.

My mom was on the phone with a lady wanting a donation from the bakery for her sister's benefit, and my mom mentioned me and my problem, and this lady is a nurse. She goes "oh, if she needs to see a neurolgist, never ever EVER see Shatla or Arastu. EVER. They are known around here as screwups". Ahem. Guess who the first two neurologists I saw were? Shatla and Arastu. I wish I knew that back then, I probably would already be diagnosed by now. I swear to Christ.

So, one of the things the stupid ass neurologist #2 told me before, is that he thinks my symptoms could possibly be lyme disease. So, not believing him, I go online to check out some symptoms of that. Guess what I find?

If you can't read it, it says: Lyme Disease Symptoms-whatever you're looking for, you can get it on eBay.

Um...that's not healthy.

So, my arm hurts and I have to go watch Friends now!

Ta ta!

Optic Neuritis

Well, I went back to the eye doctor the other day.

I was diagnosed with Optic Neuritis. My color perception is decreased, my actual vision has increased slightly. Optic Neuritis is common in people who have Multiple Sclerosis...I'm in the middle phase of ON now...the whole thing takes about 9 weeks...starts out bad for 3 weeks (which it was), then the middle stage where it levels off, and then the end results usually...how my vision is going to stay for a while. He wasn't able to see it before, that's why he had me come back, and now I have it. I asked him if it was wise for my former neurologist to have me wait 3 months to have another MRI...he goes "um..did he know you couldn't see?!" I said "yup....". He said absolutely not, I need treatment now to slow the progress of my eye sight getting worse and I need injections of prednisone about 3 times a week for a few weeks...I'm going up to Syracuse so I can get those now, and I'll probably have a lumbar puncture, too (spinal tap). Wheeeeee.... :(

Well, at least my 2 new doctors are helping me and were disgusted that my old neurologist wanted me to wait 3 months...I thought there was something ridiuculous about that...I had all my files transferred to my new doctor...I think things are going to get better now that I have good doctors, instead of the morons I had jerking me around for 3 years, assuring me I didn't have MS. My new primary care physican even asked me the same thing my eye doctor did...they couldn't believe he wanted me to wait 3 months, on top of the 3-4 years of symptoms I've had. Gyah. I swear to god. If I had gotten dignosed 3 years ago, my vision probably woudln't be so bad because I would have had treatment early on in the stages it takes. Bah. Freaking doctors.

Well, how wonderful. Now I have blurred vision in my left eye, reds look pink to me now. I can't read an eye chart. You know, I know things could be a lot worse, but it would be better now if doctors would have looked at my history of symptoms and said something about the lesion "he thought he saw" three years ago in my brain.

ah well, bye for now.

Update

Well, I had my MRI done on March 2nd, they told me it would take 24 hours to get the results in. I waited Friday, Saturday, Sunday, Monday..no phone call with what the hell is going on. So I call my doctor's office Tuesday.

"Hi, this is Jaime...I'm calling to find out the results of my MRI done at CMI on Thursday. "

"Ok, you're not a patient here. You're a patient at the Waterville office."

"ok...I guess I'll call there..."

"Hi, this is Jaime...I'm calling to find out the resutls of my MRI done at CMI on Thursday."

"OK, you're not a patient here. You're a patient at the Washington Mills office. Call over there, they'd have your papers."

"um, Washington Mills told me I'm not a patient there, that I'm a patient at Waterville...they said they don't have my papers there."

"Hi, this is Jaime again. Waterville just told me I'm not a patient there either."
"oh ok, then you're probably a patient here."

"Um..could you please check? Both you and Waterville are telling me I'm not a patient of theirs."

*huffy sound* "hold on please, I'll check"

You should have fucking checked the first time I called, jackass.

"Hi, Jaime. We don't have your papers here. I see here that you've been to both offices. We don't like when patients switch which office they go to. Why did you do that?" (scolding-like)

"I called months ago asking them to change me to Washington Mills because it's easier for me to get there."

"Well, you have to sign release papers to get the papers up to this office then. That's what you have to do."
"They don't have my papers over there."

"Could someone please just give me my results to my MRI?"

"Dr. Petrie is out of his office today. He has to read those first in order to tell you what it all means. "

"I had my MRI done on thursday, i've been waiting since then to hear about them. Did you guys ever get the fax they sent you? could you please tell someone to call me asap with my results, I was told told it was an emergency."

"Who told you it was an emergency?!" (scolding-like)

"My eye doctor"

"does HE has the results?"

I swear to CHRIST!

"well, I'll put a note here that you're in a hurry."

Did I say I was in a hurry?!? I said it was an E M E R G E N C Y. I'm losing my freaking EYE SIGHT, and you're just going to sit on the results for almost a WEEK!?! Are you kidding me?! I paid $900 dollars for that freaking MRI, I have no insurance, they're MY results!!!! I PAID for them!

"Who is your primary care physician?"

"Dr. Petrie"

"we have on here that your doctor is the nurse practitioner at Waterville."
"Um, my doctor is petrie, I was told this when I first started coming to you guys."




*calling waterville*

"Hi, this is jaime again. Could you please tell me where I'm supposed to be a paitent? Washington Mills office tell sme I'm yours, and they don't have my papers. They say the nurse practitioner is my primary care physician."
"you've never been here before, though, right?"

"yes, I've been there once before."

"we have you as a no-show once, and that's all. You've never been here."

"yes, I have been there. A few months ago."

"well, we don't have your papers."




*calling my eye doctor now*

"Hi, this is Jaime, I'm calling about the results for my MRI I had on Thursday at CMI."
"we didn't get any results. Call your doctor, they'd have your results."




*talking to CMI now* "Hi, this is Jaime, could you tell me if and when you faxed my results to my doctor and my eye doctor?"

"yes, we faxed them on Thursday at 3:00. We could re-fax them if you'd like"

"yes, please. Thank you."



*Talking to regular doctor's office*

"Hi, this is Jaime. CMI re-faxed over my results."

"Dr. Petrie has read your results but he asked me to set up an appointment for tomorrow to discuss the results and to catch up because he hasn't seen you in a while."

Note: Dr. Petrie has never seen me before. A phone call before, she told me he was out of his office and hasn't read the results yet, so therefore he cannot give me the results. ASSHOLE. Also, what is Dr. Petrie doing with my results if he's not my actual doctor?

"Hi, this is Jaime. Is my doctor in?"

"yes, but she's seeing patients."

"could you give her a message to call me by the end of the day?"

"didn't they already talk to you? you have an appointment to hear your results tomorrow."

OH, and how the fuck would a receptionist at Waterville know all about my appointment in a matter of 10 minutes?

"yes, but I want to know right now. I've been waiting since Thursday to find out what is wrong and I don't want to wait another day."

"well, I'll levae a phone message, but I don't think he wants to tell you the results over the phone...."

OH THAT'S NICE. Way to make me even MORE nervous! Great. Something IS wrong but they've not called me in 6 days....




*calling eye doctor*

"Hi, this is Jaime. Did you receive a fax from CMI?"

"oh yes, she called me and asked me our fax number and said she was going to re-fax over some results from your MRI, but I was on the computer, and when I'm online, we can't receive faxes..."

I was waiting for her to say something more. But guess what? NOPE! that was her whole explanation."

"why don't you call your doctor's office, one of the nurses should be able to give you your results without the doctor being there."




*calling doctor's again*

"Hi, this is Jaime. Did you guys receive a re-fax of my results that someone could read to me? I really need to know my results. I've been waiting 6 days now"

"Oh, all they sent over was a scribbled preliminary thing that I can't read...Petrie has the results."

Hm. How in the hell does Petrie have my results if he's away and NOT my doctor? Interesting.



*Calling CMI

"HI, this is Jaime. Petrie's office told me all you sent over was a scribbled preliminary thing."

"ok, hold on, let me check.

*her talking toanother person at CMI..."you faxed both doctor's offices the typed report, right? not a scribbled preliminary?" "yeah, like a thousand times now"

"Yes, we did fax them over and it was the full, typed report."

"ok, thank you!"

AAAAAAAAAAAAAAHHHHHHHHHHHHHHHHHH!

So that's my doctor story. There was even more that I left out, too. Can you imagine? I mean, people get mad at us for messing up their donut order once in a blue moon, but these people are messing around with a human life?

So, I went to the doctor today. Turns out, I probably do have MS, much like I have thought for the past 5 years but neurologists kept telling me no way, you don't have MS. Even after they found a lesion-looking thing in my brain, he did another MRI and it was gone so he said nope, yo'ure fine! Today's news was not good. He's sending me back to the neurologist tomorrow, possibly for a spinal tap and to verify that I have Multiple Sclerosis, Relapsing/Remitting. All of the symptoms I've been having all these years, the numbness, the numbness again, the UTI like thing, and now my eye sight, they're all MS. Everytime they would go away, I was just in Remission. Then something else would happen. I don't know what to say. I always knew there was something NOT NORMAL about going numb in half of your body.

Want to hear the findings?

There are numerous foci of increased T2 and FLAIR signal seen in the subcortical and periventricular white matter bilaterally, which are increased in number compared to the previous study of 6-9-03. One of the new foci seen in the left periatrial white matter shows enhancement. Findings are most compatible with demyelinating disease with an active plaque seen in the right periatrial white matter. The ventricles are normal in size. No abnormal extra-axial collection is seen. No additional areas of enhancement are identified.

Hm. Interesting. My last MRI done in '03, he told me it was ALL CLEAN. NOTHING IS THERE. Oh, but what does it say? The white matter thingies have increased in number? So there WAS something in my MRI THREE YEARS AGO?!? AAAAAAH! Doctors. I think we're going to try to find a doctor in Syracuse...If I had known about this 5 years ago, there are medicines that could slow the process of WHITE MATTERS GROWING IN MY BRAIN!

Ok, I have to go watch Frasier to calm down....

byebye....

Troubles

I don't like when people worry about me :(

About 3 weeks ago, my left eye went blurry on me. Well, it's not blurry, there's just something there that I can't see...it's confusing really. All I know is that I have trouble seeing things lately. So, we went to the eye doctor man. He did a 3 hour eye exam on me and said this: "Well, what I found was....absolutely nothing...". Hm. How freaking great. Really, I was hoping he'd say I needed glasses or something. So, he said there could be something way in the back of the brain that he just can't see that could be affecting my eye sight. So he ordered an MRI. He asked me if I had ever had an MRI before and I said yes...He asked me what for and he asked me what my symptoms were...I said I was going numb from my waist down, and then my arms and hands were numb before. Then I told him he had thought I had MS. Then he looked at me kinda sad looking and said "well, I didn't want to say anything, but, that's actually the reason I want you to have an MRI". Gyah...I swear to god, if I end up having MS, I am so suing that neurologist. I don't like this. I don't want to go through the stupid tests again...and I DON'T want MS. WEll, who am I to gripe about something like that...it's rather selfish, isn't it...I'm sorry :(

WEll, I did have my MRI today though, it lasted from 8:30 to 10...my head is pounding....it hurt me :( And then she couldn't find a good fat vein for her to inject that dye into my bloodstream...so she was poking around and then she hasd the needle in my vein finally and she kept jiggling it. EVer have someone do that? Boy is thata nauseating feeling...

My dad has been really sad lately...I asked my mom what is wrong with dad, and she just told me that he's really worried about me...I know my mom is trying not to freak me out, but, going blind in one eye doesn't seem like something that could turn out to be positive or not serious. I came home today after having breakfast with both of them, and my dad just hugged me...I wanted to cry.... :(

I'll be ok, I just don't like not seeing things the way I used to...it really bothers me especially when I'm at work and can't read the orders to see what I have to write on a cake or when I'm driving and I can't see the cars in front of me... oh well...

byebye everyone, God Bless.
And, God Bless Officer Joseph Corr from the New Hartford Police Department, who died in the line of duty....my heart goes out to his family...