Ugh.
I hate people.
You already knew that, right? Right.
I have no idea why I'm writing right now but I feel the need to. I'm pissy. Sorry, but I am.
My neurologist's office in Syracuse made an appointment for me for tomorrow (January 17th) and I could not make it so I called today and tried to reschedule. But, of course, I had to go through eight billion people to try to do this. I had to leave a voice mail message with a bitch. I hate her. So I left my message saying I needed to reschedule my appointment. She finally calls back (which is a huge surprise) and said I never had an appointment for tomorrow and that I have one on Tuesday. I hate that. They even sent me a letter verifying my appointment date on JANUARY 17th. I have it in writing. I think I'll make a copy and post it on here to prove to the few people that read this thing that I am right and not insane. So then she got pissy and said that if I don't come in again I have to let them know because they were having an MS specialist come just to see me. Why the hell didn't someone tell me that? So she said she doesn't want to waste his time. Go chase yourself. And why haven't I been seeing a specialist this whole time? It's beyond me.
Apparently they want to change my medication because I need a more aggressive therapy. Something I didn't want to hear but I'll deal with it. They either want to put me on Rebif or start me on Tsyabri. With Rebif, I will most likely have flu-like symptoms majority of the time which I would rather not have. Or, with Tsyabri: Warning
Tysabri increases the risk of progressive multifocal leukoencephalopathy (PML), a viral infection of the brain that usually leads to death or severe disability.
Ahem. No. I have no idea what to do now. What do I go with? Apparently Tsyabri is a cure-all which I'm all for, because I'd love to delay any disability in the future and help the ones I have now, but, I don't want a brain disease! And, I'd rater not be sick every week of my life.
I love pizza!
Hey, check this out. I'm so proud! http://mvny.org/restaurants/new-hartford/ Fifth one down!
My dogs (Reno and Duncan) got into another fight-to-the-death battle. They both can't walk at the moment. But, I am proud because neither of them gave up and submitted to the other! You should see the blood.....
Anyway, I have to go watch Frasier and feel better.
Toodles with noodles!
Love, Jaime Lee
I hate people.
You already knew that, right? Right.
I have no idea why I'm writing right now but I feel the need to. I'm pissy. Sorry, but I am.
My neurologist's office in Syracuse made an appointment for me for tomorrow (January 17th) and I could not make it so I called today and tried to reschedule. But, of course, I had to go through eight billion people to try to do this. I had to leave a voice mail message with a bitch. I hate her. So I left my message saying I needed to reschedule my appointment. She finally calls back (which is a huge surprise) and said I never had an appointment for tomorrow and that I have one on Tuesday. I hate that. They even sent me a letter verifying my appointment date on JANUARY 17th. I have it in writing. I think I'll make a copy and post it on here to prove to the few people that read this thing that I am right and not insane. So then she got pissy and said that if I don't come in again I have to let them know because they were having an MS specialist come just to see me. Why the hell didn't someone tell me that? So she said she doesn't want to waste his time. Go chase yourself. And why haven't I been seeing a specialist this whole time? It's beyond me.
Apparently they want to change my medication because I need a more aggressive therapy. Something I didn't want to hear but I'll deal with it. They either want to put me on Rebif or start me on Tsyabri. With Rebif, I will most likely have flu-like symptoms majority of the time which I would rather not have. Or, with Tsyabri: Warning
Tysabri increases the risk of progressive multifocal leukoencephalopathy (PML), a viral infection of the brain that usually leads to death or severe disability.
Ahem. No. I have no idea what to do now. What do I go with? Apparently Tsyabri is a cure-all which I'm all for, because I'd love to delay any disability in the future and help the ones I have now, but, I don't want a brain disease! And, I'd rater not be sick every week of my life.
I love pizza!
Hey, check this out. I'm so proud! http://mvny.org/restaurants/new-hartford/ Fifth one down!
My dogs (Reno and Duncan) got into another fight-to-the-death battle. They both can't walk at the moment. But, I am proud because neither of them gave up and submitted to the other! You should see the blood.....
Anyway, I have to go watch Frasier and feel better.
Toodles with noodles!
Love, Jaime Lee
posted by Jaime Lee @ 5:56 PM
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